Well I did not go up on Sat. Instead I am going up tonight (Sun.) and spending a couple days with them. I will hang out with Isabelle and Luke for Halloween at Jesse and Daelene's. I am so excited to see them. With a few sunny days here they have actually taken Scarlett to a park for just a little while. They let her just sit and swing in the swing (which every 2 year old loves). She sure enjoys a bit of fresh air. I think it is good for all of them.
Still eating so that is great. No more feeding tube!! Drugs are still a challenge and will be for awhile. Some days are better than others but it is difficult for sure. Her count is low and she is scheduled for a transfusion on Monday. They still spend a lot of time in the hospital even though they are discharged. They are really enjoying being together as a family even though sometimes it is tight quarters all in one room.
As always the whole family is grateful for so many kind words and prayers.
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