Scarlett's fever is gone but of course they have had her on megadoses of antibiotic. They are still waiting for results from those blood tests. Bobbi was telling me today about the medications that Scarlett is on. She takes soooo many. And they all have assorted reactions and side effects. One makes her moody, one makes her jaws ache, one of her common ones will change how she looks, etc. She takes one kind 3 times a day, every day. Another one is 3 times a day but only 3 times a week. Another one is one day a week, another is day 1, day 14 and day 28. (by the way, I am not at all sure that I have got it right or that I have included them all - I was losing count as Bobbi was telling me) The one she got today is a one-time drug but very strong. She cried a lot and seemed to be in a lot of pain. A few days ago she was eating and it was not such a big deal to give out all of these medications. They were easily hidden in apple juice, chocolate pudding, etc. Now she has absolutely no appetite, so they have been having to just shove these medicines down her throat, several times a day. And she is not liking it!! One is supposed to increase her appetite but they have not seen that yet - in fact the very opposite is happening.
Bobbi and Lance are so busy!! Everything takes so long, just to take her to the bathroom with all of the tubes and hook-ups is a major deal. Plus there are people coming in all day. With the medicine she took today the kids can have very serious reactions so they were taking her blood pressure constantly, checking for rashes, etc. There is just very little down time. Bobbi expressed frustration not being able to respond to everyone. They are so grateful for all of your kind thoughts and she wishes she could answer and respond but they just physically can not do it. I usually only get a few minutes of their time each day and then they need to go. Please know that they are very appreciative, almost overwhelmed by everyone's kindness.
Bobbi decided to talk to Scarlett about what was happening. She asked her questions like- Do you know where we are? Are we in the Philippines? Are we at Grandma's? Are we at our house? (which is a funny question because right now they don't really have a house) Then Bobbi explained the hospital and how her legs hurt and all the doctors want to make them better. So Bobbi told her she had been a good girl to let them do all of these things to her. She pointed to her central line in her chest and told her how she got that so she would not have to get poked so much in her arms. And Scarlett perks up and says, "I cwy reawy hard." Bobbi says "ya you did cry really hard". Scarlett says "No more cwy reawy hard."
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