Wednesday 2 November 2011

Staus update...

We are doing pretty good. Slowly we are starting to find some sort of routine and schedule. Things are still quite unpredictable at times but generally we are setting into the fact that yes she has Leukemia and this is how our life is going to be for a while. The fog over us seems to be lifting a little and we are starting to be able to think more than just a minute ahead. The days aren't full of emotional beak downs. (They still happen but not as often)

We can form complete sentences and generally feel more conscious. That may sound a bit weird to those of you who have never been hit over the head with the news of cancer. It really knocks you off your feet for a while especially when it's your baby girl. Things are just a blurrrr for a long time. However, we are finding our footing again....slowly.

The hardest times of the days are medication times. Morning and night....she HATES them and I don't blame her. It's extremely stressful trying to get her to take them and a lot of the time we end up having to pin her down and force them in. It's awful, and emotional for everyone involved. Lance and I do it together every time. I can't yet imagine having to do them alone. The other stressful days are clinic days. They always involve a poke and meds which she obviously doesn't like and they make her so sick. Also sitting there, in clinic, all day is hard with the extreme food cravings and constant eating. It's hard to stay prepared.

We are starting to talk about renting a house here in Calgary, close to the hospital for the winter. We are looking forward to the end of November when we get more information as to what the next 8 months are going to look like for Scarlett and for us. We are anxious for that time when we can find out how her cancer is responding to the Chemo Therapy and the Meds.

We are so unbelievably grateful to all those of you who have helped us through this so far. For all your thoughtful, encouraging messages. For all your love and support. We know we would never have made it this far without all of you. Thank you for being involved, even in the smallest way, and for caring so much.

Now we will just continue on...moving forward day by day....

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